Here we are in 2012. My GI tried me on a strong does of steroids in January to see if that helped with the EoE at all. I honestly didn't notice any improvement and high doses of steroids made me feel so awful. My GI wanted me to participate in the formula study, but the catch is that I would have to pay for the 4 endoscopies. I am unable to afford that right now so I have spent the last couple of months talking with both my allergist and GI about what the next steps should be. I can't afford to be in the study but it has been decided that I need to go on the formula to see if I can see an improvement in my symptoms. I have been so sick the last 1 1/2 months. I have been so tired and have had no energy. Along with experiencing pain and swelling when I eat, my body hurts very badly and I can't seem to find any relief from that. I have recently gone through more blood work to check for anything else that could be causing these symptoms, but they only found that my iron was borderline high.
So, the plan is that I will remove all food from my diet and drink this elemental formula until I can get feeling better......starting tomorrow!
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