December 2010 - June 2011

December 2010 - June 2011:

Since my endoscopies didn't show any signs of EoE, my new GI decided to run some tests to see if she could find any other explantion for my symptoms. I had a couple CT scans and lots of blood work. The CT scans didn't show any abnormalities but my bloodwork showed that I was deficient in a few vitamins and my C-1 Esterase Inhibitor and my C1Q Binding Assay were low which made my GI question whether or not I had something called Acquired Angioedema.

At this point she sent me to another allergist, Dr. Gleich, at the Universtity Hospital who specializes in rare allergic diseases. He ran the test again and concluded that I probably didn't have the Acquired Angioedema because my blood results didn't show all of the deficiencies needed to correctly diagnose the Acquired Angioedema. So at this point....they still aren't sure but my GI still thinks I possibly have it, partly because I have a lot of swelling in my GI tract after I eat, and the allergist thinks that I probably don't......

Dr. Gleich also decided to run some allergy tests on me. The foods that showed up with this allergy prick test were:

Barley
Coconut
Corn
Egg
Fish
Garlic
Hazelnut
Oat
Peanut
Pecan
Pistachio
Rice
Sesame Seed
Strawberry
Tomato
Walnut
Watermelon

The list just keeps getting longer and longer....

Dr. Gleich also wanted me to do a 3 day trial of the formula to see if it helped me feel any better. I have to say the formula was rough. I was so nauseous and it doesn't help that it doesn't taste very well. I cried so much during those three days hoping that I would NEVER have to do this again.....